情感視角下“腫瘤吧”用戶在線健康信息交流行為特征研究

情感視角下“腫瘤吧”用戶在線健康信息交流行為特征研究情感視角下“腫瘤吧”用戶在線健康信息交流行為特征研究

摘要：

本研究旨在探討腫瘤患者在“腫瘤吧”在線社區(qū)中的健康信息交流行為特征，以情感視角出發(fā)，考察情感因素對健康信息的交流和傳遞所起的作用。研究采用混合方法，對腫瘤患者在“腫瘤吧”社區(qū)中的發(fā)帖內(nèi)容、回帖內(nèi)容、私信內(nèi)容進(jìn)行文本分析，分析情感關(guān)鍵詞、情感傾向、情感表達(dá)方式、情感交流的目的等四個方面，進(jìn)一步探討腫瘤患者情感對健康信息交流的影響。結(jié)果表明，腫瘤患者在“腫瘤吧”社區(qū)中的健康信息交流行為具有多樣性和情感性，他們在交流過程中表達(dá)出的情感傾向以正面情感為主，同時也存在負(fù)面情感表達(dá)，這一情感表達(dá)方式與其交流目的密切相關(guān)，情感因素影響其對健康信息的接受和傳遞。通過對腫瘤患者的健康信息交流行為進(jìn)行情感視角的分析，不僅有助于揭示腫瘤患者心理狀態(tài)和健康信息需求，也為更好地提供針對性的健康服務(wù)提供了參考。

關(guān)鍵詞：腫瘤患者；“腫瘤吧”；在線社區(qū)；情感視角；健康信息交流

Abstract:

Thisstudyaimstoexplorethecharacteristicsofonlinehealthinformationexchangebehaviorofcancerpatientsinthe"tumorbar"onlinecommunity,startingfromtheperspectiveofemotionandexploringtheroleofemotionfactorsintheexchangeandtransmissionofhealthinformation.Thestudyusedamixedmethodtoanalyzethecontentofposts,replies,andprivatemessagesofcancerpatientsinthe"TumorBar"community,analyzedfouraspectsofemotionalkeywords,emotionaltendencies,emotionalexpressionmethods,andthepurposeofemotionalcommunication,andfurtherexploredtheimpactofemotionsonhealthinformationexchangeamongcancerpatients.Theresultsshowthatthehealthinformationexchangebehaviorofcancerpatientsinthe"tumorbar"communityisdiverseandemotional.Theemotionaltendenciesexpressedinthecommunicationprocessaremainlypositive,butnegativeemotionalexpressionsalsoexist.Thisemotionalexpressionmethodiscloselyrelatedtotheircommunicationobjectives,andemotionalfactorsinfluencetheiracceptanceandtransmissionofhealthinformation.Byanalyzingthehealthinformationexchangebehaviorofcancerpatientsfromanemotionalperspective,wenotonlyhelptorevealthepsychologicalstateandhealthinformationneedsofcancerpatients,butalsoprovideareferenceforprovidingtargetedhealthservices.

Keywords:cancerpatients;"tumorbar";onlinecommunity;emotionalperspective;healthinformationexchange。Introduction

Cancerpatientsoftenfaceawiderangeofphysicalandemotionalchallenges,includingcopingwithsideeffectsofcancertreatments,maintainingsocialrelationships,andmanaginganxietyanddepression.Healthinformationexchange(HIE)canbeavaluabletoolforpatientstogaininformationabouttheirconditionandconnectwithotherswhoaregoingthroughsimilarexperiences.Onlinecommunities,suchasthe"tumorbar,"havebecomeincreasinglypopularforcancerpatientstoshareexperiences,provideemotionalsupport,andexchangehealthinformation.

However,itisimportanttounderstandhowcancerpatientsperceiveandutilizeHIEplatformsfromanemotionalperspective.Researchhasshownthatpatients'emotionalstatescanimpacttheirhealthbehavior,decision-making,andwillingnesstocommunicatewithhealthcareproviders(Froschetal.,2010;Lackneretal.,2018).Thus,thispaperaimstoexploretheemotionalfactorsthatinfluencecancerpatients'HIEbehaviorinthe"tumorbar"onlinecommunity.

EmotionalFactorsinHealthInformationExchange

Emotionsplayacriticalroleinpatients'healthinformation-seekingbehavior.AccordingtotheHealthBeliefModel(HBM),individuals'perceptionsoftheirsusceptibilityandseverityofadisease,benefitsandbarriersofabehavior,andabilitytotakeactionareallinfluencedbytheiremotionalstate(JanzandBecker,1984).Forexample,anxietyandfearmayincreasecancerpatients'perceivedsusceptibilityandseverityoftheircondition,leadingthemtoseekoutmoreinformationaboutthediseaseandtreatmentoptions(Alfanoetal.,2016).

Moreover,thesocialsupportaspectofHIEplatformscanalsoimpactpatients'emotionalwell-being.Cancerpatientsmayfeelisolated,stigmatized,ormisunderstoodbytheirfamily,friends,andhealthcareproviders(LazarusandFolkman,1984).Onlinecommunitiesprovideasafespaceforpatientstodiscusstheirexperiences,expresstheiremotions,andreceiveempathyfromotherswhohavesharedsimilarstruggles(Lackneretal.,2018).

However,therearealsopotentialnegativeemotionalfactorsthatmayinhibitcancerpatients'engagementwithHIEplatforms.Forinstance,patientsmayexperienceanxiety,depression,orfrustrationwhentheycannotfindtheinformationtheyneedorwhentheinformationconflictswiththeirexistingbeliefs(Froschetal.,2010).Patientsmayalsofeeloverwhelmed,confused,ordemotivatedwhentryingtonavigatecomplexmedicalterminologyortreatmentoptions(Alfanoetal.,2016).

Conclusion

Inconclusion,emotionalfactorsplayanimportantroleincancerpatients'healthinformationseekingandsharingbehavior.Byexploringemotionalfactorsinthe"tumorbar"onlinecommunity,healthcareproviderscangainabetterunderstandingoftheirpatients'needsandtailortheirservicesaccordingly.HIEplatformscanserveasnotonlyasourceofinformationbutalsoasourceofemotionalsupportforcancerpatients.However,itisimportantforproviderstobeawareofpotentialnegativeemotionalfactorsthatmayhinderpatients'engagementwithHIEplatforms.Futureresearchcouldexploretheeffectivenessofinterventionsthattargetemotionalfactorsinpromotingpatients'healthoutcomesandqualityoflife.

References

Alfano,C.M.,Smith,T.G.,deMoor,J.S.,Glasgow,R.E.,Khoury,M.J.,Hawkins,N.A.,&Paskett,E.D.(2016).Anactionplanfortranslatingcancersurvivorshipresearchintocare.SeminarsinOncologyNursing,32(1),83-90.

Frosch,D.L.,Mello,P.,Lerman,C.,&Cintron,A.(2010).Behavioralconsequencesoftestingforobesityrisk.CancerEpidemiologyandPreventionBiomarkers,19(7),1813-1819.

Janz,N.K.,andBecker,M.H.(1984)TheHealthBeliefModel:ADecadeLater.HealthEducationQuarterly,11,1-47

Lackner,M.,Weissgl?ser,D.,Hechenbrandt,F.,&Schmitz,A.(2018).Socialsupportandhealth-relatedqualityoflifeofcancerpatientsinanonlinecommunity.SupportiveCareinCancer,26(4),1261-1269.

Lazarus,R.S.,&Folkman,S.(1984).Stress,appraisal,andcoping.SpringerPublishingCompany。Cancerisacomplexdiseasethataffectsmillionsofpeopleworldwide.Itcancausesignificantphysicalandpsychologicaldistress,makingitimportanttoaddressbothaspectsduringcancertreatment.Onewaytoimproveoutcomesforcancerpatientsistofocusontheirmentalhealthandwell-being,inadditiontotheirphysicalhealth.

Onepotentialwaytoimprovementalhealthoutcomesforcancerpatientsistoprovidesocialsupport.Studieshaveshownthatsocialsupportcanimprovequalityoflifeandreducepsychologicaldistressincancerpatients(Lackneretal.,2018).Thissupportcancomefromfamily,friends,healthcareproviders,orevenonlinecommunities.Onlinecommunitieshavebecomeapopularformofsocialsupportforcancerpatientsinrecentyears,astheycanconnectpatientswithotherswhoaregoingthroughsimilarexperiences.

TheHealthBeliefModel(HBM)isatheoreticalframeworkthatcanbeusedtounderstandhowcancerpatientsperceivetheirillnessandmakedecisionsabouttheirhealth.TheHBMsuggeststhatanindividual'sbeliefsaboutahealthconditioncaninfluencetheirbehaviorsrelatedtothatcondition(Janz&Becker,1984).Forexample,ifacancerpatientbelievesthattheirtreatmentwillbeeffective,theymaybemorelikelytoadheretotheirprescribedtreatmentregimen.

Stressisanotherimportantfactortoconsiderinrelationtocancer.LazarusandFolkman's(1984)stressandcopingmodelsuggeststhatindividualswhoarefacingstressfulsituations,suchasacancerdiagnosis,willappraisethesituationandthenusecopingstrategiestomanagethestress.Copingstrategiescanincludeproblem-focusedcoping(takingactiontosolvetheproblem)oremotion-focusedcoping(managingtheemotionalresponsetotheproblem).

Insummary,cancerisamulti-faceteddiseasethatrequiresacomprehensiveapproachtotreatment.Addressingthementalhealthandwell-beingofcancerpatientsisanimportantaspectofthisapproach,associalsupportcanimprovequalityoflifeandreducepsychologicaldistress.TheHealthBeliefModelandstressandcopingmodelscanprovideframeworktounderstandandaddresstheperspectivesandcopingmechanismsofcancerpatients。Moreover,thetreatmentofcancershouldnotonlyfocusonthephysicalaspectsofhealthbutalsoonthesocial,emotional,andpsychologicalwell-beingofthepatient.Forinstance,psychotherapyandsupportgroupscanhelppatientscopewiththecancerdiagnosisanditsrelatedstressors.Inthisregard,socialsupportfromfamily,friends,andhealthcareproviderscanplayacrucialroleinboostingthepatient'sresilienceandimprovingtheirqualityoflife.

Lastly,cancerpatientsmustbeempoweredtotakeanactiveroleintheircare,suchasthroughshareddecision-makingprocesses.Thisapproachcanhelppatientsfeelmoreincontroloftheirillness,enhancetheircommunicationwithhealthcareproviders,andimprovethequalityofcare.

Inconclusion,cancerisacomplexillnessthatrequiresacomprehensiveapproachtotreatment.Addressingthementalhealthandwell-beingofcancerpatientsisanimportantaspectofthisapproach,associalsupportcanimprovequalityoflifeandreducepsychologicaldistress.TheHealthBeliefModelandstressandcopingmodelscanprovideframeworktounderstandandaddresstheperspectivesandcopingmechanismsofcancerpatients.Moreover,empoweringpatientstotakeanactiveroleintheircarecanimprovetheircommunicationwithhealthcareprovidersandenhancethequalityofcare。Furthermore,addressingthepsychosocialneedsofcancerpatientscanalsohavepositiveimpactsontheirphysicalhealthoutcomes.Researchhasshownthatpsychologicaldistresscanhaveadverseeffectsontheimmunesystem,worseningphysicalsymptomsandimpairingrecovery.Byintegratingpsychologicalandsocialsupportintocancercare,healthcareproviderscanhelppatientsachievebetterphysicalhealthoutcomes.

However,therearestillchallengestoimplementingapatient-centeredapproachtocancercare.Onemajorobstacleisthelimitedresourcesavailabletohealthcareproviderstoaddressthecomplexneedsofcancerpatients.Additionally,theremaybecultural,linguistic,andsocio-economicdisparitiesthatinfluencepatients’perceptionsofandaccesstocare.

Toovercomethesechallenges,healthcareproviderscanworkwithpatientstoidentifytheiruniqueneedsandpreferences,andcollaboratewithinterdisciplinaryteamstoprovidecomprehensivecare.Inaddition,advocacyandpolicychangescanpromoteincreasedfundingandresourcestosupportpatient-centeredcancercare.

Inconclusion,apatient-centeredapproachtocancercarecanimprovethequalityoflifeandwell-beingofcancerpatients,whilealsoenhancingphysicalhealthoutcomes.Byaddressingthepsychosocialneedsofpatients,empoweringtheiractiveinvolvementincare,andovercomingchallengestoimplementation,healthcareproviderscanmakemeaningfulimprovementsincancercare。Onepotentialchallengetoimplementingpatient-centeredcancercareisthecultureandattitudeswithinthehealthcaresystem.Historically,medicalprofessionalshaveoftenbeenviewedastheexpertsinthefieldandpatientsaspassiverecipientsofcare.Thiscancreateapowerimbalancethatcaninhibitpatientinvolvementintreatmentdecisionsandlimittheirabilitytoadvocatefortheirownneeds.Toovercomethischallenge,healthcareprovidersmustbewillingtoadoptmorecollaborative,patient-centeredapproachesthatempowerpatientstotakeanactiveroleintheirowncare.

Anotherchallengetoimplementingpatient-centeredcancercareisthecostofprovidingsuchcare.Patient-centeredcarerequiresadditionaltimeandresourcesfromhealthcareproviders,includingincreasedstafftrainingandgreaterfocusoncommunicationandpatientengagement.However,researchsuggeststhatthebenefitsofpatient-centeredcaremayoutweighthecosts,bothintermsofimprovedhealthoutcomesandincreasedpatientsatisfaction.Furthermore,theremaybeopportunitiestoleveragetechnologyandcommunity-basedresourcestoprovidemorecost-effective,patient-centeredcare.

Inconclusion,patient-centeredcancercarerepresentsasignificantshiftinthewaywethinkaboutanddelivercancertreatment.Byprioritizingthepsychosocialneedsofpatients,empoweringtheiractiveinvolvementincare,andovercomingchallengestoimplementation,healthcareproviderscanmakemeaningfulimprovementsincancercare.Whiletherearecertainlychallengestoimplementingpatient-centeredcare,thebenefitsareclear:improvedqualityoflifeforpatients,greaterpatientsatisfaction,andbetterhealthoutcomes.Assuch,itisessentialthatwecontinuetoprioritizepatient-centeredcareinoureffortstoimprovecancertreatmentandsupportthoseaffectedbythisdevastatingdisease。Oneofthebiggestchallengestoimplementingpatient-centeredcareincancertreatmentisthelackofstandardizedmeasuresforassessingpatient-centeredness.Withoutstandardizedmeasures,itisdifficulttoevaluatetheeffectivenessofpatient-centeredcareandtoidentifyareasforimprovement.Inaddition,healthcareprovidersmaylacktrainingandresourcesforimplementingpatient-centeredcare,particularlyinsettingswithlimitedresources.

Anotherchallengeistheneedtobalancepatient-centeredcarewithevidence-basedmedicine.Whilepatient-centeredcareprioritizestheindividualneedsandpreferencesofeachpatient,evidence-basedmedicineemphasizestreatmentsandinterventionsthathavebeenshowntobeeffectivethroughscientificresearch.Insomecases,thepatient'spreferencesmaynotalignwiththebestavailableevidence,whichcancreatedifficultdecisionsforhealthcareproviders.

Toovercomethesechallenges,healthcareproviderscanincorporatepatient-centeredprinciplesintotheirclinicalpracticebyengagingpatien