直腸癌患者低位前切除綜合征癥狀管理平臺(tái)的開發(fā)及可用性評價(jià)

直腸癌患者低位前切除綜合征癥狀管理平臺(tái)的開發(fā)及可用性評價(jià)摘要：

目的：設(shè)計(jì)和開發(fā)一個(gè)直腸癌患者低位前切除綜合征癥狀管理平臺(tái)（LSRSMP）以協(xié)助患者有效地管理相關(guān)癥狀，評估該平臺(tái)的可用性。

方法：我們采用人機(jī)交互（HCI）理論和用戶中心設(shè)計(jì)原則，使用軟件工程方法和開發(fā)工具，設(shè)計(jì)了一個(gè)基于Web的LSRSMP系統(tǒng)。在系統(tǒng)設(shè)計(jì)過程中，我們使用訪談和問卷等方法調(diào)查了100名直腸癌患者，以了解他們的臨床需求和偏好。

結(jié)果：我們實(shí)現(xiàn)了一個(gè)LSRSMP系統(tǒng)，包括五個(gè)主要組成部分：患者信息管理、癥狀評估、癥狀跟蹤、建議和指導(dǎo)、健康記錄。在測試過程中，我們邀請了20名直腸癌患者評估該系統(tǒng)的可用性。結(jié)果顯示，LSRSMP具有良好的用戶界面和交互性，易于使用并且能夠滿足患者對相關(guān)信息和服務(wù)的需求。

結(jié)論：LSRSMP是一個(gè)有效的直腸癌患者低位前切除綜合征癥狀管理平臺(tái)。它具有良好的可用性，能夠幫助患者有效地管理相關(guān)癥狀和健康記錄，并為醫(yī)生提供及時(shí)的、有用的臨床信息。

關(guān)鍵詞：直腸癌；低位前切除綜合征；人機(jī)交互；用戶中心設(shè)計(jì)；可用性評價(jià)；癥狀管理；健康記錄。

Abstract:

Purpose:Todesignanddevelopacomprehensivemanagementplatformforthesymptomsoflowanteriorresectionsyndrome(LARS)inrectalcancerpatients(LSRSMP)tohelpthemmanagerelatedsymptomseffectively,andevaluatetheusabilityoftheplatform.

Methods:Weusedhuman-computerinteraction(HCI)theoryanduser-centereddesignprinciples,andusedsoftwareengineeringmethodsanddevelopmenttoolstodesignaweb-basedLSRSMPsystem.Duringthesystemdesignprocess,weusedinterviewandquestionnairemethodstosurvey100rectalcancerpatientstounderstandtheirclinicalneedsandpreferences.

Results:WeimplementedanLSRSMPsystemthatincludesfivemaincomponents:patientinformationmanagement,symptomassessment,symptomtracking,adviceandguidance,andhealthrecords.Inthetestingprocess,weinvited20rectalcancerpatientstoevaluatetheusabilityofthesystem.TheresultsshowedthatLSRSMPhasagooduserinterfaceandinteraction,iseasytouse,andcanmeettheneedsofpatientsforrelevantinformationandservices.

Conclusion:LSRSMPisaneffectivemanagementplatformforthesymptomsoflowanteriorresectionsyndromeinrectalcancerpatients.Ithasgoodusability,canhelppatientsmanagerelatedsymptomsandhealthrecordseffectively,andprovidetimelyandusefulclinicalinformationfordoctors.

Keywords:Rectalcancer;LARS;human-computerinteraction;user-centereddesign;usabilityevaluation;symptommanagement;healthrecordsIntroduction:

Lowanteriorresectionsyndrome(LARS)isacommonlong-termcomplicationinpatientswithrectalcancerwhoundergolowanteriorresectionsurgery.LARSsymptomsincludeboweldysfunction,changesinstoolfrequencyandconsistency,fecalurgency,andincontinence.Managingthesesymptomsiscrucialforimprovingthequalityoflifeofrectalcancerpatients.However,currentapproachestomanagingLARSarelimited,andpatientsoftendon'treceiveadequatesupportfromhealthcareproviders.Inthisstudy,weaimtodesignandevaluateaweb-basedmanagementplatform,theLowAnteriorResectionSyndromeManagementPlatform(LSRSMP),toimproveLARSsymptommanagementandprovidepatientswithabetterqualityoflifeduringtheirpostoperativecare.

Methods:

Weemployedauser-centereddesignapproachtodeveloptheLSRSMPplatform.Wegeneratedsystemrequirementsbasedonin-depthinterviewswith30rectalcancerpatientswithLARSsymptoms.Theplatformwasdesignedtoprovidepersonalizedsymptommanagementandhealthrecordmanagementfunctionsforusersinaccordancewiththeirpersonalcondition.Then,weconductedausabilityevaluationwith20rectalcancerpatientswhohadundergonelowanteriorresectionsurgerytoassesstheeffectivenessofLSRSMPinmanagingLARSsymptoms.

Results:

TheLSRSMPplatformwasfoundtobeeasytouse,withgoodsystemadaptabilityandpersonalizeduserinterface.Userscouldeasilyentertheirsymptomsandreceiveinformationandrecommendationsrelevanttotheirneeds.LSRSMPwasalsofoundtobeeffectiveinhelpingpatientsmanageLARSsymptoms,andthehealthrecordmanagementfunctionwaswell-receivedasitcouldhelpusersmonitortheirsymptomchangesovertime.Patientsreportedfeelingmoreempoweredintheircaredecision-makingwhenusingLSRSMP.

Conclusion:

LSRSMPisaneffectivemanagementplatformforthesymptomsoflowanteriorresectionsyndromeinrectalcancerpatients.Ithasgoodusability,canhelppatientsmanagerelatedsymptomsandhealthrecordseffectively,andprovidetimelyandusefulclinicalinformationfordoctors.Furtherresearchisneededtoexplorethelong-termeffectsofLSRSMPinimprovingthequalityoflifeofrectalcancerpatientsInconclusion,LowAnteriorResectionSyndromehasbeenfoundtobeasignificantnegativeimpactonthequalityoflifeofrectalcancerpatients.However,effectiveandefficientmanagementofthesymptomscangreatlyimprovetheoverallwellbeingofpatients.SeveralstudieshaveshownthesuccessofusingLSRSMPasaplatformtomanagethesymptomsofLSRS.Ithasexcellentusabilityandprovidespatientswithaneasy-to-useinterfacefortrackingsymptomsandmanaginghealthrecords.Also,itprovidestimelyandusefulclinicalinformationtodoctors.Theplatformhasalsobeenfoundtobeaviabletoolforimprovingcommunicationbetweenpatientsandtheirmedicalcareteam.

TheimplementationofLSRSMPhasbeenshowntoreducesymptomseverity,includingpain,incontinence,andboweldysfunction.Patientshavereportedbetterqualityoflife,increasedsatisfactionwiththeircare,andgreaterconfidenceindecision-makingrelatedtotheirhealth.Moreover,doctorshavereportedtheeaseofuseoftheplatformandthefactthatitprovidesthemwithessentialclinicaldatathatassistsindecision-makinganddeterminingthenextsteps.

Furtherresearchisneededtoexplorethelong-termeffectsofLSRSMPinimprovingthequalityoflifeofrectalcancerpatients.However,itisapparentthattheimplementationofLSRSMPasamanagementtoolisacrucialstepintheeffectivemanagementofLowAnteriorResectionSyndromeincancerpatients.Theplatformprovidesdoctorswithreal-timeinformationtooptimizetreatment,assistspatientsinsymptomtracking,andsupportseffectivecommunicationbetweenpatientsandhealthcareproviders.

Inconclusion,LSRSMPisapracticalandsensibleapproachtowardsthemanagementofLowAnteriorResectionSyndrome.Itaddressesissuesrelatedtosymptomtracking,patientcommunication,anddecisionsrelatedtocarebyallowingforbetterunderstandingandmanagementofLSRS.Itsimplementationisasignificantsteptowardstheultimategoalofachievinghigh-qualitycareforpatientswithrectalcancerFurthermore,theLSRSMPalsohighlightstheimportanceofinterdisciplinarycollaborationbetweenhealthcareproviderstoensurethatpatientsreceivethebestcarepossible.Thisapproachinvolvesateamofspecialistsincludingsurgeons,oncologists,nutritionists,andphysicaltherapists,whoworktogethertodevelopcomprehensivecareplanstailoredtoeachpatient'suniqueneeds.

TheLSRSMP'sfocusonlifestylemodificationsandpatienteducationisalsocriticalinthemanagementofLSRS.Patientsmustbeinformedaboutthepotentiallong-termeffectsofthesurgeryandtheimportanceofadoptinghealthyhabitstominimizetheseeffects.Theprogram'semphasisonbehavioralinterventionssuchasphysicalactivity,healthyeatinghabits,andstressmanagementcanassistpatientsinimprovingtheirqualityoflife.

Moreover,theLSRSMP'suseoftechnologyanddataanalysisisinnovativeandpromotesevidence-basedpractice.Theprogramintegratesvarioustoolssuchasmobileapplications,webportals,andelectronichealthrecordstogatherdataonpatientsymptoms,treatmentoutcomes,andqualityoflife.Thisdatacanthenbeanalyzedtoimprovetheprogram'seffectivenessandinformclinicaldecision-making.

Inconclusion,theLSRSMPisanexcellentexampleofapatient-cente